I should stop being surprised when life gives me a twist that I didn't plan for. The ideal's in my head are a joke. Reality is, that I have to be flexible all the time. And I stay less stressed when I leave almost everything open-ended. This style of living makes some people a bit crazy (like my husband. and my mother)... but it's the only way I've found to be able to function as I need to without going insane. Or just crying a lot.
Life is sending us a twist right now.
I WAS preparing to start the kids in school next week.
I WAS planning to enroll in danish language classes shortly thereafter.
I WAS learning how to begin a business so I could start designing again (for pay!).
But most of that has to be put on hold.
Last week I received a phone call from the CF nurse. Katelyn had once again cultured Pseudemonas. The system in our current care center is that the 1st time you culture PA, it's inhaled & oral antibiotics. If cultured again within 6 months, we are at risk for it becoming a chronic and/or dangerous infection, so it's straight to IV's. This sounds intense. It IS intense. But it's the preventative treatments such as this that may keep CF patients from every developing symptoms, and incurring lung damage.
Katelyn looks fine. She doesn't even have a runny nose. She is not wheezing. She is nearly symptom-less, but yet, she has this bad bacteria growing in her lungs. So here we are... preparing for a 2 week hospital stay. Preparing for Katelyn's first ever hospital admit. Which means DJ & I have been trying to find a way to be with Katelyn full-time at the hospital, while DJ still goes to work and Colin ends up SOMEWHERE during the days...
It's been a headache. But we made a new plan. We had a schedule in place, ready to move forward and get these next 2 weeks over with... Then this morning, right as we were about to head out the door, suitcase in hand, headed for the hospital with Katelyn, Colin fell down the stairs.
He cut open his head - a big, deep cut. Blood everywhere. Lots of tears - his and mine.
I feel so thankful my mother was still here to TRY and keep me calm. To put pressure on his head and hold Colin while I ran next door to ask the neighbors for a ride to the ER. And to stay home with Katelyn so I could take Colin to the hospital and fix his head, focusing on him alone.
I feel so thankful that my neighbor was home. That he has a car and had offered to drive us any time we had an emergency. That he was experienced with medical care and bandaged Colin up with a very well done temporary wrap to control the bleeding. That he speaks Danish and was able to handle checking us in to the hospital.
I feel so thankful that Colin is so use to doctors and medical facilities. He was not scared to be at the ER today. He was just excited to play with toys in the waiting room. And while of course he cried and screamed when they gave him stitches, I could see the determination in his eyes to be brave. He understood what was happening. He is amazing and so strong.
If you're going to be faced with an emergency, at least several factors were in our favor. And we made it through.
Life is sending us a twist right now.
I WAS preparing to start the kids in school next week.
I WAS planning to enroll in danish language classes shortly thereafter.
I WAS learning how to begin a business so I could start designing again (for pay!).
But most of that has to be put on hold.
Last week I received a phone call from the CF nurse. Katelyn had once again cultured Pseudemonas. The system in our current care center is that the 1st time you culture PA, it's inhaled & oral antibiotics. If cultured again within 6 months, we are at risk for it becoming a chronic and/or dangerous infection, so it's straight to IV's. This sounds intense. It IS intense. But it's the preventative treatments such as this that may keep CF patients from every developing symptoms, and incurring lung damage.
Katelyn looks fine. She doesn't even have a runny nose. She is not wheezing. She is nearly symptom-less, but yet, she has this bad bacteria growing in her lungs. So here we are... preparing for a 2 week hospital stay. Preparing for Katelyn's first ever hospital admit. Which means DJ & I have been trying to find a way to be with Katelyn full-time at the hospital, while DJ still goes to work and Colin ends up SOMEWHERE during the days...
It's been a headache. But we made a new plan. We had a schedule in place, ready to move forward and get these next 2 weeks over with... Then this morning, right as we were about to head out the door, suitcase in hand, headed for the hospital with Katelyn, Colin fell down the stairs.
He cut open his head - a big, deep cut. Blood everywhere. Lots of tears - his and mine.
I feel so thankful my mother was still here to TRY and keep me calm. To put pressure on his head and hold Colin while I ran next door to ask the neighbors for a ride to the ER. And to stay home with Katelyn so I could take Colin to the hospital and fix his head, focusing on him alone.
I feel so thankful that my neighbor was home. That he has a car and had offered to drive us any time we had an emergency. That he was experienced with medical care and bandaged Colin up with a very well done temporary wrap to control the bleeding. That he speaks Danish and was able to handle checking us in to the hospital.
I feel so thankful that Colin is so use to doctors and medical facilities. He was not scared to be at the ER today. He was just excited to play with toys in the waiting room. And while of course he cried and screamed when they gave him stitches, I could see the determination in his eyes to be brave. He understood what was happening. He is amazing and so strong.
If you're going to be faced with an emergency, at least several factors were in our favor. And we made it through.
So here I sit - suitcase fully packed to move Katelyn into the hospital (rescheduled for tomorrow), and a sweet boy fast asleep, resting after a very busy morning. I could not have planned for what happened today. I won't even pretend that I can plan for tomorrow...
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